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worried

Registered: March 22, 2004
Posts: 22
Reply with quote  #1 
Hello. Can anyone tell me if they always find some blood in their urine during a cystitis attack? Because of this my GP is sending me to hospital for tests.
JaneW

Registered: Dec 3, 2003
Posts: 1,447
Reply with quote  #2 
Hi,Try not to worry too much.Its quite common to get blood in the urine with bacterial cystitis and IC.
Do you know what sort of tests the doctor is sending you for?
What sort of symptoms do you get?
I'm sure that someone here will be able to advise you.
Let us know how you get on.Love Jane W
worried

Registered: March 22, 2004
Posts: 22
Reply with quote  #3 
I am seeing a consultant urogolist at the hospital next Wednesday 31st. The appointment is only for about twenty minutes so I guess he will tell me then. What happened was I had a cystitis attack and my GP asked for a sample which he sent off to the hospital. He prescribed Cephalaxin or something which sounds like that and the hospital confirmed it was an infection and that the correct medication had been prescribed. It cleared up pretty quickly
but then the doctor rang to say because there was some blood I had to go to hospital because they now test everyone with blood. I rang to ask my own doctor (the other was one of the partners) all about it and he said they would be testing for cancer because I was in my fifties and have had about four or five attacks in the last ten years. I am very worried and some people on the other forum IC said it was probably bacterial and nothing to worry about. But I don't want the upheaval of cystocopy etc. unless its absolutely necessary. My mum and my aunt both had this problem at my age and my aunt is 77 and not had any attacks for ten years! I find it so confusing. If its cancer surely it would not be cured by an antibiotic.










DawnCOB

Moderator
Registered: Dec 2, 2003
Posts: 4,489
Reply with quote  #4 
Quote:
Originally Posted by worried
I am seeing a consultant urogolist at the hospital next Wednesday 31st. The appointment is only for about twenty minutes so I guess he will tell me then. What happened was I had a cystitis attack and my GP asked for a sample which he sent off to the hospital. He prescribed Cephalaxin or something which sounds like that and the hospital confirmed it was an infection and that the correct medication had been prescribed. It cleared up pretty quickly
but then the doctor rang to say because there was some blood I had to go to hospital because they now test everyone with blood. I rang to ask my own doctor (the other was one of the partners) all about it and he said they would be testing for cancer because I was in my fifties and have had about four or five attacks in the last ten years. I am very worried and some people on the other forum IC said it was probably bacterial and nothing to worry about. But I don't want the upheaval of cystocopy etc. unless its absolutely necessary. My mum and my aunt both had this problem at my age and my aunt is 77 and not had any attacks for ten years! I find it so confusing. If its cancer surely it would not be cured by an antibiotic.



Hello,

It is quite normal to have blood in the urine with a bacterial infection. As you have had a few attacks they are just making sure that everything is ok. If you only have blood in your urine with an infection present then there isnt usually any reason for them to request a cystoscopy.

My daughter had 5 BC infections within the space of 2 years, she went for a hospital consultation and had her bloods done and a basic bladder/kidney scan , just to make sure everything was fine, and it was.

Good luck for wednes, try not to worry , I know thats easier said than done sometimes. Let us know how you get on.

Dawn

worried

Registered: March 22, 2004
Posts: 22
Reply with quote  #5 
Thank you Jand and Dawn - that is helpful. Dawn did your daughter have blood too?

i had a blood test at my GP surgery this morning because I told him my brother has polycystic kidneys and he said it would show the state of my kidneys (plus cholesterol). I don't have pain in my back where the kidneys are and I feel fighting fit. I am so worried. But I will let you know how I get on.

Also the attack I had before the last one was pretty bad with lots of blood but I had taken a 1000 high strength vit. c tablet and when I had antibiotics it cleared immediately. I think Vitamin C supplements can trigger attacks can't they?

Thanks again for relieving some of my worry.






worried

Registered: March 22, 2004
Posts: 22
Reply with quote  #6 
Thank you Jand and Dawn - that is helpful. Dawn did your daughter have blood too?

i had a blood test at my GP surgery this morning because I told him my brother has polycystic kidneys and he said it would show the state of my kidneys (plus cholesterol). I don't have pain in my back where the kidneys are and I feel fighting fit. I am so worried. But I will let you know how I get on.

Also the attack I had before the last one was pretty bad with lots of blood but I had taken a 1000 high strength vit. c tablet and when I had antibiotics it cleared immediately. I think Vitamin C supplements can trigger attacks can't they?

Thanks again for relieving some of my worry.






DawnCOB

Moderator
Registered: Dec 2, 2003
Posts: 4,489
Reply with quote  #7 
Quote:
Originally Posted by worried
Thank you Jand and Dawn - that is helpful. Dawn did your daughter have blood too?

i had a blood test at my GP surgery this morning because I told him my brother has polycystic kidneys and he said it would show the state of my kidneys (plus cholesterol). I don't have pain in my back where the kidneys are and I feel fighting fit. I am so worried. But I will let you know how I get on.

Also the attack I had before the last one was pretty bad with lots of blood but I had taken a 1000 high strength vit. c tablet and when I had antibiotics it cleared immediately. I think Vitamin C supplements can trigger attacks can't they?

Thanks again for relieving some of my worry.


Hi ,

Yes my daughter did have a little blood in her urine along side the bacteria.

I am aware that Vit C tablets appear to cause irritation to an already irritated bladder wall.

Its postitive that you are feeling fighting. So dont make yourself sick with worry, your doctor and you have done the right things to make sure you remain feeling fighting fit.

Dawn

Jacky

Registered: Dec 5, 2003
Posts: 12
Reply with quote  #8 
Hi
I have had water prolems for 6 years now.Never have they found infection but i ALWAYS have traces of blood in my urine(sometimes more than others).I have had all the test done and they can't find anything wrong.The uro says it's infection and i am a complicated case but perminant low dose antibiotics does the trick for me.
I worried myself sick for years which made me anxious and caused me to have panic attacks(i hated my illness and life so much)Now i'm on an even keel i enjoy every day as much as i can.Keep your mind busy so your not thinking about THE WHAT IF'S.Your own mind can be your worst enemy!Take care and chill out and best of luck to you
Jacky
Millie

Registered: Dec 3, 2003
Posts: 778
Reply with quote  #9 
Dear Worried

I'd have to say that your doctor sounds a bit insensitive to just say they're testing for cancer in such a matter of fact way.
I've had a permanent bacterial infection for years now (appx 7)which is controlled but never completely cured by daily antibiotics and have had blood in my urine a couple of times. Although I worry about cancer, my tests (eg scans etc) have been clear. I always thought that any blood simply meant that the infection had got higher and into your kidneys - Dawn will know more about that I'm sure. You're probably just unlucky and more susceptible/sensitive than usual to the bacteria causing your infections.
I'm sure you'll be reassured soon.
Take care
Millie
x
worried

Registered: March 22, 2004
Posts: 22
Reply with quote  #10 
Thank you so much Millie and Julie. As I read things on this great website it certainly does make me think that my doctor is just being ultra efficient in saying "you are over fifty and have blood in the urine so need to be tested for cancer". I did mention the high strength vitamin C as being a cause at that time and he said "oh, no, certainly wouldn't have been that". I think GPs know a little about everything but not a great deal about anything! Still that would take a genuis I guess.

I will try not to worry too much on Wednesday when I see the consultant.
Millie

Registered: Dec 3, 2003
Posts: 778
Reply with quote  #11 
Hi Worried

I saw my consultant urologist today and mentioned higher doses of Vit C to boost immune systems and he said be very careful - I got the impression that he didn't think it was a good idea at all and could inflame the bladder. I also discussed my risk of bladder cancer and he was adamant that the main cause for concern would be if I was (or ever have been)a heavy smoker-which thankfully I have not. He went on to say that middle aged men were far more prone than women and, although he didn't elaborate, I was left with the impression that the antibiotics I have taken over the years may actually have lowered my risk of cancer. He certainly didn't think that a constant bacterial infection had increased my risk anyway.
Good luck with the consultant tomorrow - please let us know how you get on

Millie
x
worried

Registered: March 22, 2004
Posts: 22
Reply with quote  #12 
Millie, thanks so much for this helpful information. I did smoke when I was a teenager and in early twenties but gave up at 25 years old (expecting first baby) and have not touched one (nor wanted to) since then - 32 years. I read somewhere that internal ops. might be the cause of some of these problems. The only thing I did which was a great upheaval was to have four children, the second was 9lb 10 oz and the third pregnancy was twins who were 7lb and 7lb 11 oz which was one hell of a strain and caused pre-eclampsia! Ah well, we shall see what happens tomorrow but I don't want to have cystocopy if I can help it but of course if he feels it necessary I will have to. My daughter is coming with me so that is some moral support.

Thanks again. This is a great site. You can't imagine my fears before I discovered it and all the helpful people here. fingers crossed for tomorrow and I will let you know what happens.

Love Pat.



worried

Registered: March 22, 2004
Posts: 22
Reply with quote  #13 
Well, I have literally just got back from the hospital and they took a urine test which they said was clear. The lady doctor said from how I described it all to her that it was almost certainly a UTI but because there was blood in it they are duty bound to test. Therefore I have to go back and have xray, ultrasound, kidney die test and cystocopy. Probably in about two months due to a waiting list. She said sorry to put me through all this trauma but she felt it was just infection and, she said, most people don't even report them so don't have to go down the route I am now on. I don't like the sound of the kidney die or the cystocopy but she said lasts about twenty minutes. Are these things done together on the same occasion does anyone know please?

My blood test at the GP showed no problems with anything, kidneys working normally.


Love Pat.








Reply with quote  #14 
Hi

I have had the kidney X ray - they put a needle in your arm to inject the dye in, then after a few minutes you lie down and are X-rayed. It is quite painless apart from the needle going in!

I am sure it is wise to have the tests, but don't forget you can refuse any treatment if you feel you don't want it. My Mum used to get very bad bacterial cystitis and she used to pass a lot of blood with it - eventually she had a cystoscopy, but that was all - it took about 5 minutes as an out patient.

Glynis
Millie

Registered: Dec 3, 2003
Posts: 778
Reply with quote  #15 
Hi Pat

I've been wondering how you got on today. It does sound very much like a routine UTI which, whilst horrible, shouldn't cause you any worry
I've not had the dye thing done and the cystoscopy I had a few years ago was done at the same time as a urethral stretch under a general anaethestic so I didn't know much about it! I do know that I got an infection directly afterwards though so don't worry too much if you get ill again - mind you, it was probably the stretch that caused my infection . I'm sure that if they really thought there was something to worry about they'd want to see you a lot quicker than what you've been told!
Take care

Millie
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