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dph1

Registered: Sept 14, 2008
Posts: 28
Reply with quote  #1 
I'm new here and have a somewhat urgent question...
I'm getting a bladder distension/stretch for my IC in 4 days (Wed) and am wondering what your guys' experience with it are like? And more importantly, for those who have had it done, has it relieved your symptoms at all? how helpful is it?

Any comments would be much appreciated

-D

Sara

Registered: Aug 4, 2008
Posts: 232
Reply with quote  #2 
Hi.  I have just had a bladder stretch and may I suggest you read the threads; 'Bladder stretch tommorow' and Message for JaneW' as there is information regarding the bladder stretch procedure on both of them that should be of interest to you.

I had mine on Weds and am OK but with some concerns.  If you read the threads it will explain why.

Best of luck with your procedure = let us know how you get on.

Sara  XX
dph1

Registered: Sept 14, 2008
Posts: 28
Reply with quote  #3 
Hi Sara,
Thank you for pointing me in the right direction. I am sorry to hear that you are still experiencing some bleeding. I hope that clears up soon or that you find out how to treat it.  Hopefully you will be symptom free for as long as possible!!

Anyone else have their experiences to share? I'd be very interested...

Thanks
-D

ICLouisa

Registered: Aug 26, 2008
Posts: 118
Reply with quote  #4 
Hello,

Bladder stretch was the first treatment that I had for I.C. The procedure was fine and the only pain I felt was the first few wees I had afterwards.

Unfortunately it didnt help my I.C at all but i'm glad to hear that it has helped others.  I had mine about 8 years ago so maybe it is time to try again?

Lou
DawnCOB

Moderator
Registered: Dec 2, 2003
Posts: 4,489
Reply with quote  #5 
Ive had about 5 and found them helpful ....

here is the recent link to Sara re distentions

http://www.websitetoolbox.com/tool/post/cobf/vpost?id=2969353

best wishes

Dawn
dph1

Registered: Sept 14, 2008
Posts: 28
Reply with quote  #6 
Hello,
Thank you for both of your responses.

ICLouisa, if you don't mind me asking, how serious were your symptoms before your bladder stretch? I'm just curious b/c I'm wondering if how serious symptoms are have anything to do with whether or not the stretch is effective.

I'm getting increasingly worried about mine.

Does anyone know of occasions where the stretch actually makes symptoms... WORSE?

-D

ICLouisa

Registered: Aug 26, 2008
Posts: 118
Reply with quote  #7 
dph - Don't be worried, it sounds like others have benefited from it, lots of people on this board have.  Mine was about 7 years ago now so perhaps I need to try it again.

When I had it I had it I think i had just been diagnosed with IC but I would have to check my records for you to confirm, i have a copy of my medical records as my urologists over the years have been up and down, some good, some bad as i'm sure we have all experienced.

I think perhaps my symptoms were not as bad as they have been at other times.

I will check through my medical notes and get back to you as my memory is a little hazy.

Don't worry though, as Ive said before the only pain is the first few wees afterwards, apart from that I was fine.
maz451

Registered: Feb 16, 2008
Posts: 696
Reply with quote  #8 

dph1 - it might be a good idea if you search on this site for the words "bladder stretch" and/or "bladder distention" which might produce more information for you. As I understand it, research has produced mixed results with some benefitting, others not and some made worse. I personally have not, and would not, have it done - but that is my personal view only. I have expressed this many times before as you will probably see if you search on here. Good luck anyway. I take it from the times of your posts that you are not in the UK (or just a bad sleeper??) If you are in the US then it may be worth your while looking at the American ic network website - again you will find out more about this if you search on here! M.

Sara

Registered: Aug 4, 2008
Posts: 232
Reply with quote  #9 
dph1  -I am replying here too - you have asked me how I am in another thread - here is the reply just in case you miss it.

Yes D, I'm glad to say it's day 6 after my stretch and all is well.  I went back to work on Monday - I have quite a physical job working with children and thought I might need another couple of days off but things seem to be getting better. 

In those 6 days I have gone from visiting the loo 20-22 times a day to 6 or 7.  I am sleeping through the night and have no pain.  I am slowly decreasing my medication with no ill effects.  I really hope I will get some lasting relief.  If I am one of the lucky ones for whom a bladder stretch will work for a considerable period of time I will be happy to have them repeated. 

I am working very hard at not being tempted to go to the loo for fear that my bladder will start shrinking again.  I'm very pleased so far and don't want the bubble to burst (or my bladder -ha ha).  Keep everything crossed for me!!

Sara XX

Don't be too afraid to give it a go D; you may have a good response - it's been worth it to me even if the pain came back tomorrow, at least I will have had a short break from it.  You asked ICLouisa how bad her symptoms were pre her stretch - mine were getting so bad that at my last visit to the uro I asked to have my bladder removed.  I have had IC for 6.5 years and prior to my stretch I had had continual low level and flare up pain for at least 12 months with no remissions. 

Best of luck - I will be thinking of you.

Sara XXX

dph1

Registered: Sept 14, 2008
Posts: 28
Reply with quote  #10 
Thank you all for your kindness in giving me such thoughtful responses.

Maz451- how observative! I am not from the UK... or the US.. I'm in Canada. I don't know how I found this site...probably links after links.. I wasn't aware there was a US site separate from this. Would there then by any chance be a Canadian site as well?

ICLouisa & Sara, Thank you soo much. You both have helped ease my fears for tomorrow. I guess I will just keep my fingers crossed and hope for the best. And wow, Sara! 6-7 times a day is pretty good!! I'm happy for you. I hope it stays this way for a while, at least!

I will post an update when the procedure's done (and I can't wait til it is.... heh)

-D



JaneW

Registered: Dec 3, 2003
Posts: 1,447
Reply with quote  #11 
Good luck with your procedure dph1.I hope it goes as smoothly and pain free as possible and that it helps alleviate your symptoms.
Love and best wishes.Jane XX
dph1

Registered: Sept 14, 2008
Posts: 28
Reply with quote  #12 
Hi everyone,
As promised, here's my update. Thank you for those of you who are following me through this... It means a lot.
so I was released from the hospital about 1 hour ago. The process was actually not as bad as I feared.. so far anyway. 
The problem right now is that I haven't really had a 'proper' urination since the procedure ended at 1pm (it is now 5pm here). I tried going around 4pm and only managed to squeeze out a few drops.. i feel like my urethra has completed closed or something and it HURTS A LOOOOT when I try to push any urine out...particularly my bladder/lower pelvic area... it doesn't burn.. it just feels like a knife inside when i push...

Have you guys experienced this? Is this normal?

-D.

Gig

Registered: July 10, 2007
Posts: 518
Reply with quote  #13 
Sounds like you have inflammation- please don't push- it will make it worse.
If it gets worse you may need a catheter, so just keep an eye on it- try tickling the base of your spine to help the nerves to bladder, or having a warm bath and weeing there!

anne27

Registered: June 22, 2008
Posts: 111
Reply with quote  #14 
 Hi dph1 i had a bladder stretch a few years ago and afterwards found it extremely difficult to urinate. Once i started to drink lots of water everything improved.

If you had the procedure under general anaesthetic then you would not have had enough water before hand, it is worth increasing your water intake to see if things improve.
Anne
dph1

Registered: Sept 14, 2008
Posts: 28
Reply with quote  #15 
Gig (or anyone who would know)- If I do have an inflammation, how do I "fix" it? Will it cause an infection? I'm on antibiotics right now..my uro/surgeon gave it to me after the stretch but did not exactly tell me why. Maybe he knew there was an inflammation or that I would be prone to one?

I will definitely try to drink more water as I know I don't drink enough even on a general basis.

Thanks for the feedback. I really appreciate it.

There is less pain in my pelvic/bladder area today...but the prickly/knife cutting feeling at the urethra is still there especially when I try to pee.

-D.

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